Survivorship resources and support services throughout Australia

survivorship - lifa after cancer - acsc

There are practical and emotional supports available for cancer survivors, their family and carers throughout Australia.
Select a state from the list below to view the survivorship support services and resources that are available:

Australian Capital Territory >>
New South Wales >>
Northern Territory >>
South Australia >>
Tasmania >>
Victoria >>
Western Australia >>

Support Services in ACT

Cancer Council ACT
  • CCACT runs 'Living Well After Cancer' forums in conjunction with CCNSW. See CCNSW website for more details.

Support services in NSW

Cancer Council New South Wales
CCNSW provides the following support services:
  • Complementary therapies - A Meditation CD is provided free to 'Living Well After Cancer' participants.
  • Exercise & Nutrition - 'ENRICH' exercise and nutrition programme.
  • Return to work - 'Working Beyond Cancer' forum is a community based workshop for employees with cancer, working carers, employers and staff. For more details contact CCNSW on 13 11 20.
  • Other programs - Indigenous Survivorship forum. For more details contact CCNSW on 13 11 20.

NSW Cancer Survivors Centre
NSW Cancer Survivors Centre provides the following support services:
  • The NSW Cancer Survivors Centre is coordinating existing services and conducting new research to identify and address the challenges for cancer survivors. For more information see The NSW Cancer Survivors Centre website.

Survivorship Program
Contact details: Sydney Childrens Hospital
High st, Randwick NSW 2031
Contact: Karen Johnston, Clinical Nurse Consultant 02 9382 1741

Kaleidoscope, Children's Cancer and Haematology Service, Late Effects Clinic
Contact details: John Hunter Children's Hospital
Lookout Rd, New Lambton, NSW 2305
Contact: Lyndal Moore, Late Effects Coordinator 02 4985 5415 or 02 4985 5180

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Support services in NT

Cancer Council Northern Territory
CCNT provides the following support services:
  • Emotional - 'Annual Breast Cancer Retreat' for women at any stage of their cancer journey. For more details contact CCNT on 1800 678 123.
  • Exercise & Nutrition - 'Your Mind Your Body' is a 4 week program that runs for 2 hours per week.

Support Services in Queensland

Cancer Council QLD
CCQLD provides the following support services:
  • Emotional -The 'Moving Forward' programme is run in 1 hour sessions approximately every 6 weeks. It covers topics such as post treatment, adjustment, lifestyle and nutrition. This programme will commence in July 2012. For more information contact CCQLD.
  • Exercise - 'C-vivor' is a community and activity based peer support program. For more information, visit the C-vivor website.

After Cancer Therapy Service
  • The After Cancer Therapy Service is a long-term follow-up service for survivors of childhood and adolescent cancer. It offers a comprehensive long-term follow-up service including a personalised cancer management summary and long-term follow-up recommendations; accepts referrals for one-off reviews, transfer of care or simply for a patient to get an end-of-treatment patient management summary.

    Contact details:
    Queensland Children's Centre, Royal Children's Hospital
    Herston road, Herston, QLD 4029
    Contact: Aaron Thompson, Clinical Nurse Consultant 07 3636 5513

The Cancer Rehabilitation Program - University of Queensland
  • The Cancer Rehabilitation program is conducted by an Accredited Exercise Physiologist at The University of Queensland who has been trained and has experience in Medical Exercise and Cancer Rehabilitation. For more information visit the UQSport website.

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Support services in South Australia

Cancer Council South Australia
CCSA offers the following support services:
  • Emotional, exercise & nutrition - 'Staying Healthy After Cancer' self managment programme assists with positive and sustainable self management skills. Topics inclide nutrition, exercise, relaxation techniques, managing fatigue, difficult emotions, goal setting and survivorship. For dates and locations visit the CCSA website.
  • Complementary Therapies - 'Managing Cancer Stress' using mindful meditation practice as a way of managing difficult thoughts, physical and emotional issues that cancer can bring. It is an 8 week programme. Open to all people who are experiencing distress from cancer (friends and family included). For more information visit the CCSA website.
The Long Term Follow-up Clinic for Survivors of Lymphoma and Leukaemia
  • The Long Term Follow-up Clinic for Survivors of Lymphoma and Leukamia is located at The Queen Elizabeth Hospital. The eligibility criteria is: currently aged over 18 years, 5 years disease-free of lymphoma or leukaemia. Referrals are accepted from GP's, Specialist Doctors and Survivors themselves. At this stage the clinic is run the 4th Tuesday afternoon of each month.

    Contact details:
    Alison Keenan (Nurse Co-ordinator)
    The Queen Elizabeth Hospital
    28 Woodville road, Woodville South SA 5011
    Telephone: (08) 8222 6632

Royal Adelaide Hospital – Late Effects clinic
• A clinic specifically to meet the needs of people who have received an Allogeneic transplant at least 12 months prior. This clinic aims to incorporate lifestyle factors, disease monitoring and long-term health maintenance to ensure optimal daily function and quality of life.

Contact details:
Haematology outpatients, Level 7 East Wing, Royal Adelaide Hospital, North Terrace, Adelaide SA 5000
Contact: Nicole Loft, Haematology Nurse Practitioner Candidate, 08 8222 4000 (request pager 22986) or 08 8222 0052.

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Support services in Tasmania

Cancer Council Tasmania

Support services in Victoria

Cancer Council Victoria

Peter Mac Late Effects Service
  • A review service for young adult survivors of childhood cancer; staffed by a team of child and adult specialists with expertise in the medical, psychological and social fields; aims to prevent, detect , educate and provide support and treatment for problems that may arise in this group pf survivors.

    Contact details:
    Peter Mac Cancer Centre, St Andrews place, East Melbourne, VIC 3002
    Contact: Priscilla Gates, Haematology Late Effects Nurse Coordinatgor, 03 9656 5854. Natalia Goroncy, Solid Tumours and CNS Late Effects Nurse Coordinator, 03 9656 1060

Alfred Hospital Late Effects Clinic
  • Held on Friday mornings 9.30-12.30pm. The clinic welcomes referrals for patients who are more than two years (disease free) following autologous or allogeneic Stem Cell Transplantation. The clinic aims to improve the health of long term survivors of transplantation targeting a range of late effects including physical, social and psychological concerns.

    Contact details:
    Phone 09 9076 3451
    Fax referrals to 9076 2298
    Contact Dr Sharon Avery, Malignant Haematology and Stem Cell Transplantation Physician

    Please note: This clinic is an MBS-Billed Clinic. Please address referrals to a specific Haematologist.

Victorian Paediatric Integrated Cancer Service Long-term Follow-up Program
  • Supports and facilitates the transition from curative treatment through surveillance and on to the 'survivorship' phase of the cancer journey; aims to provide a clear and consistent standard of long-term follow-up care, which is responsive to the needs of childhood cancer survivors and their families.

    Contact details:
    Royal Children's Hospital, 50 Flemington rd, Parkville VIC 3052 (Clinics at Royal Children's Hospital, Monash Medical Centre and Regional Outreach)
    Contact: Karen Egan, Long Term Follow-up Program Manager, 03 9345 4082 / Susan Skinner, Clinical Nurse Coordinator, 03 9345 9149.

Australian Cancer Survivorship and Information Centre - A Richard Pratt Legacy
  • The Australian Cancer Survivorship and Information Centre - A Richard Pratt Legacy, is located at Peter Mac Cancer Centre, East Melbourne. The centre contains a section of survivorship information. To view this information click here.

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Support services in Western Australia

Cancer Council Western Australia
CCWA provides the following support services:
  • Emotional - Cancer Council WA is developing a Survivorship programme. Check back here for more information soon.
  • Exercise - 'Life Now' is a 12 week long community based programme. To be eligible participants must have had treatment for cancer within the last two years. Carers and family members are eligible to attend with the patient. For dates and locations visit the CCWA website.
  • Complementary therapies - 'Life Now Meditation Classes' is a 6-8 week community based program. For dates and locations visit the CCWA website. 'Life Now Yoga Classes' are offered to groups of people with cancer or recovering from cancer at an introductory level for 6-8 weeks. For dates and locations visit the CCWA Website.
  • Community based programs - Encore is a free 8 week exercise program for women who has experinced breast cancer. For dates and locations visit the Encore website. Vario Wellness Clinic is a two part health and well being exercise programme for cancer survivors located at the Edith Cown University Health and Wellness Institute. For information on dates and the cost invloved visit the Vario Wellness Clinic website.

Paediatric Oncology Long-term Follow-up Clinic
  • The Paedeatrci Oncology Long-term Follow-up Clinic sees patient from five years post treatment and monitors them for possible late effects of their treatment of childhood cancer; patients are seen yearly up until the age of 18 or until they complete secondary school, whichever comes first, they are then transitioned to an adult facility or the care of their GP. This clinic also refers patients to other specialty services such as endorcrinology, cardiology and dentistry.

    Contact details:
    Princess Margaret Hospital for Children, Roberts rd Subiaco WA 6008
    Contact: Kerrie Wells, Long-term Follow-up Coordinator 08 93408031

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Proudly supported by
  • Pratt Foundation
  • State Government of Victoria - Department of Health